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International Thalassemia day 8th May 2023
- Dr. Aditi Kumar
- 6 मई 2023
- 2 मिनट पठन
8th May 2023 - International #Thalassemia day
Be Aware. Share. Care.
The International Thalassaemia Day 2023 highlights the empowering force of education and its association with appropriate and quality care of this disorder.
The 2023 campaign, entitled ‘BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap’, takes a further step ahead and focuses on the need for improved access to quality, lifelong thalassaemia education for people living with the disorder and healthcare professionals involved in their care.
By maximizing the knowledge and skills of every person affected by thalassaemia and the people who care for them, we can achieve positive changes in health outcomes and quality of life, and reduce the disease burden for patients and the society.
Thalassaemia affects about 300 million people worldwide, with about 500,000 having a severe form of the disease. 80% of these people live in low and middle-income countries and face many and multiple unmet needs and persisting challenges with regards to the health, social and other care they receive. We need to help change that!
People living with thalassaemia need access to ongoing, disease-specific education to better understand their condition and assert their basic right of equal access to appropriate care.
Prevention of Thalassemia
Although thalassemia cannot be prevented, only the following measures can reduce the risk of having thalassemia in newborns.
Parent genetic test for the presence of thalassemia gene
Prenatal screening
Provision of public awareness and education about thalassemia
Screening for Thalassemia
The screening procedures include prenatal testing, done before the baby is born. The following tests are used to assess the presence of thalassemia:
Chorionic villus sampling: Typically performed between the 11th and 14th weeks of pregnancy. A tiny sample of placental tissue is taken using a fine needle for evaluation, inserted through the mother's abdomen.
Amniocentesis: A small sample of the fluid encircling the baby is taken, around the 16th week of pregnancy, by inserting a fine needle through the mother's stomach into the uterus. Some of the infant's cells are present in the fluid, which can be used to screen for thalassemia.
The whole point is to emphasise the importance of early diagnosis , prevention strategies and debunk all the associated myths and misconceptions regarding thalassaemia and improving health outcomes and quality of life of thalassaemic patients.
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